#FibrolamellarHepatocellularCarcinoma Instagram Photos & Videos

FibrolamellarHepatocellularCarcinoma - 172 posts

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  • Thank you to those of you who have come along side and joined us in Lacey’s journey. We are so grateful for your support. Whether it’s sharing Laceys story, messaging us, praying for her, contributing to her GoFundMe, holding thoughts in your heart of love, strength and a cure for Lacey, we are more than grateful.
As Lacey’s Mother, I experience pain for her pain and at times overwhelmed with a myriad of emotions. In this and although we are away from home, I feel such a presence of love and strength all around me... all around Lacey.  We feel your love and support. 
Starting with this life-saving surgery in Chicago, Lacey has a proactive, aggressive Medical Team, knowledgeable of this rare disease. Their goal is Lacey’s cure. There will be ongoing treatment at home in California and some requiring travel. She’ll receive Chemo and Immunotherapy, which may also include continued Surgeries, Ablations, and a living donor transplant, if that plan is needed. The goal is to find the treatment that not only stabilizes, but ultimately cures Lacey. 
While the finish line with this disease at times seems to evade us, Lacey weathers each storm with grace and grit. She makes every day “the best day ever”. In such Gratitude, 
The White-Funkhouser Family “It doesn’t get any easier, you just get stronger... That’s what a storm is all about. You may fall down and lose your spark, but when you rise up, rise up with the whole damn fire” Lacey 🔥💪🏼💛🌻
#GirlOnFire #LaceyStrong #TeamLaceyGrace #GraceAndGrit #RUSHUniversityMedicalCenter #RUSHChildrensHospital #RUSHLiverTransplantTeam #RUSHPediatricOncology #Chicago #AgouraHills #FibroFighter #FibrolamellarHepatocellularCarcinoma
  • Thank you to those of you who have come along side and joined us in Lacey’s journey. We are so grateful for your support. Whether it’s sharing Laceys story, messaging us, praying for her, contributing to her GoFundMe, holding thoughts in your heart of love, strength and a cure for Lacey, we are more than grateful.
    As Lacey’s Mother, I experience pain for her pain and at times overwhelmed with a myriad of emotions. In this and although we are away from home, I feel such a presence of love and strength all around me... all around Lacey. We feel your love and support.
    Starting with this life-saving surgery in Chicago, Lacey has a proactive, aggressive Medical Team, knowledgeable of this rare disease. Their goal is Lacey’s cure. There will be ongoing treatment at home in California and some requiring travel. She’ll receive Chemo and Immunotherapy, which may also include continued Surgeries, Ablations, and a living donor transplant, if that plan is needed. The goal is to find the treatment that not only stabilizes, but ultimately cures Lacey.
    While the finish line with this disease at times seems to evade us, Lacey weathers each storm with grace and grit. She makes every day “the best day ever”. In such Gratitude,
    The White-Funkhouser Family “It doesn’t get any easier, you just get stronger... That’s what a storm is all about. You may fall down and lose your spark, but when you rise up, rise up with the whole damn fire” Lacey 🔥💪🏼💛🌻
    #GirlOnFire #LaceyStrong #TeamLaceyGrace #GraceAndGrit #RUSHUniversityMedicalCenter #RUSHChildrensHospital #RUSHLiverTransplantTeam #RUSHPediatricOncology #Chicago #AgouraHills #FibroFighter #FibrolamellarHepatocellularCarcinoma
  • 489 29 23 October, 2018

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  • What a wild ride the past month and a half has been! After one month in Chicago for Lacey’s surgery, procedures, Infusions, blood transfusion, then home to an evacuation due to wildfires. This coupled with sleepless nights, comforting Lacey through neuropathy, massaging her legs and arms to soothe her, showers to ease her pain during the night. So Grateful to be back in our home now, along with the right cocktail for her pain, adjustments in her treatment and a good medical team looking out for her both here and in Chicago. Lace is always a warrior and although Chemo is brutal, she always finds those windows; opportunities to share her radiant self. 💪🏼🌞💛 #LaceyGrace #LaceyStrong #FU2C #FibroFighter #RUSHPediatricOncology #RUSHLiverTeam #AgouraHills #CaliforniaPainMedicineCenter #FibrolamellarHepatocellularCarcinoma
  • What a wild ride the past month and a half has been! After one month in Chicago for Lacey’s surgery, procedures, Infusions, blood transfusion, then home to an evacuation due to wildfires. This coupled with sleepless nights, comforting Lacey through neuropathy, massaging her legs and arms to soothe her, showers to ease her pain during the night. So Grateful to be back in our home now, along with the right cocktail for her pain, adjustments in her treatment and a good medical team looking out for her both here and in Chicago. Lace is always a warrior and although Chemo is brutal, she always finds those windows; opportunities to share her radiant self. 💪🏼🌞💛 #LaceyGrace #LaceyStrong #FU2C #FibroFighter #RUSHPediatricOncology #RUSHLiverTeam #AgouraHills #CaliforniaPainMedicineCenter #FibrolamellarHepatocellularCarcinoma
  • 249 10 23 November, 2018

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  • Merry Christmas to my sweet angel. Life is so incredibly unfair. God definitely chose the best when he picked you. You are the most honest, loving, beautiful soul that I have had the pleasure of calling mine. You saw the world for what it was and people for who they truly were. You were wise beyond your years sweet boy. I don’t know that I will ever understand until the day I’m with you and you can explain it to me. I love you with every ounce of my soul baby. Merry Christmas in heaven. 😇💚🎗#Christmasangel #childhoodcancerawareness #fibrolamellarhepatocellularcarcinoma #missmysweetboy #raystrong
  • Merry Christmas to my sweet angel. Life is so incredibly unfair. God definitely chose the best when he picked you. You are the most honest, loving, beautiful soul that I have had the pleasure of calling mine. You saw the world for what it was and people for who they truly were. You were wise beyond your years sweet boy. I don’t know that I will ever understand until the day I’m with you and you can explain it to me. I love you with every ounce of my soul baby. Merry Christmas in heaven. 😇💚🎗 #Christmasangel #childhoodcancerawareness #fibrolamellarhepatocellularcarcinoma #missmysweetboy #raystrong
  • 43 2 25 December, 2018
  • My amazing, kind, caring, loving, silly, smart, strong husband passed away last night. He is my heart and soul, and has taught me so much over the short 8 years I have been with him. It hasn't even been a year since we got married but he has given me a life time of love. It is unfair that such a pure and perfect person had to go through such a tough battle so early in life. He was going to make a wonderful sheriff, he already had all the codes memorized by junior year in high school. Everything he did was to help me and protect me. We went on our first plane ride, first helicopter ride, my first ambulance ride etc. His family is amazing and I'm so happy that even though I lost my love of my life, I still have his whole family. The last two years have truly tested our love but everything we did was for one an other. I love you Dustin and we will meet again some day💚

Prepare for the flood of posts of this amazing man

#love #perfection #husband #man #strong #strength #cancer #fuckcancer #livercancer #rarecancer #fibro #fibrolamellar #fibrolamellarhepatocellularcarcinoma #fhc #loveing #marriage #21 #young #loveofmylife #toosoon #family
  • My amazing, kind, caring, loving, silly, smart, strong husband passed away last night. He is my heart and soul, and has taught me so much over the short 8 years I have been with him. It hasn't even been a year since we got married but he has given me a life time of love. It is unfair that such a pure and perfect person had to go through such a tough battle so early in life. He was going to make a wonderful sheriff, he already had all the codes memorized by junior year in high school. Everything he did was to help me and protect me. We went on our first plane ride, first helicopter ride, my first ambulance ride etc. His family is amazing and I'm so happy that even though I lost my love of my life, I still have his whole family. The last two years have truly tested our love but everything we did was for one an other. I love you Dustin and we will meet again some day💚

    Prepare for the flood of posts of this amazing man

    #love #perfection #husband #man #strong #strength #cancer #fuckcancer #livercancer #rarecancer #fibro #fibrolamellar #fibrolamellarhepatocellularcarcinoma #fhc #loveing #marriage #21 #young #loveofmylife #toosoon #family
  • 56 18 9 December, 2018

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  • Update on Lace: 
Lacey decided to move back home to have the family support she needs for her medical care.  She’s registered locally at Moorpark College, and will return to work in February. Lace is three weeks into her chemo regimen (GemOx/Avastine, a 6 hour Infusion every 2 weeks). Some days/and especially nights are very rough due to side effects. We do what needs to be done for her to comfortably get through those nights. When she’s feeling good , she’s having fun being a normal 18 year old sunshine self. She’s in a good proactive space with the medical team on board between RUSH, Chicago UCLA and City of Hope, coupled with Lacey’s Warrior Spirit! New Imaging is scheduled December 12th. 💛💪🏼 🌻 #LaceyStrong
#FU2C #LaceyGrace #GraceAndGrit
#RUSHPediatricOncology  #CityOfHope #CaliforniaPainManagement
#FibroFighters #FibrolamellarHepatocellularCarcinoma
  • Update on Lace:
    Lacey decided to move back home to have the family support she needs for her medical care. She’s registered locally at Moorpark College, and will return to work in February. Lace is three weeks into her chemo regimen (GemOx/Avastine, a 6 hour Infusion every 2 weeks). Some days/and especially nights are very rough due to side effects. We do what needs to be done for her to comfortably get through those nights. When she’s feeling good , she’s having fun being a normal 18 year old sunshine self. She’s in a good proactive space with the medical team on board between RUSH, Chicago UCLA and City of Hope, coupled with Lacey’s Warrior Spirit! New Imaging is scheduled December 12th. 💛💪🏼 🌻 #LaceyStrong
    #FU2C #LaceyGrace #GraceAndGrit
    #RUSHPediatricOncology #CityOfHope #CaliforniaPainManagement
    #FibroFighters #FibrolamellarHepatocellularCarcinoma
  • 260 19 4 December, 2018
  • What a wild ride the past month and a half has been! After one month in Chicago for Lacey’s surgery, procedures, Infusions, blood transfusion, then home to an evacuation due to wildfires. This coupled with sleepless nights, comforting Lacey through neuropathy, massaging her legs and arms to soothe her, showers to ease her pain during the night. So Grateful to be back in our home now, along with the right cocktail for her pain, adjustments in her treatment and a good medical team looking out for her both here and in Chicago. Lace is always a warrior and although Chemo is brutal, she always finds those windows; opportunities to share her radiant self. 💪🏼🌞💛 #LaceyGrace #LaceyStrong #FU2C #FibroFighter #RUSHPediatricOncology #RUSHLiverTeam #AgouraHills #CaliforniaPainMedicineCenter #FibrolamellarHepatocellularCarcinoma
  • What a wild ride the past month and a half has been! After one month in Chicago for Lacey’s surgery, procedures, Infusions, blood transfusion, then home to an evacuation due to wildfires. This coupled with sleepless nights, comforting Lacey through neuropathy, massaging her legs and arms to soothe her, showers to ease her pain during the night. So Grateful to be back in our home now, along with the right cocktail for her pain, adjustments in her treatment and a good medical team looking out for her both here and in Chicago. Lace is always a warrior and although Chemo is brutal, she always finds those windows; opportunities to share her radiant self. 💪🏼🌞💛 #LaceyGrace #LaceyStrong #FU2C #FibroFighter #RUSHPediatricOncology #RUSHLiverTeam #AgouraHills #CaliforniaPainMedicineCenter #FibrolamellarHepatocellularCarcinoma
  • 249 10 23 November, 2018
  • Thank you to those of you who have come along side and joined us in Lacey’s journey. We are so grateful for your support. Whether it’s sharing Laceys story, messaging us, praying for her, contributing to her GoFundMe, holding thoughts in your heart of love, strength and a cure for Lacey, we are more than grateful.
As Lacey’s Mother, I experience pain for her pain and at times overwhelmed with a myriad of emotions. In this and although we are away from home, I feel such a presence of love and strength all around me... all around Lacey.  We feel your love and support. 
Starting with this life-saving surgery in Chicago, Lacey has a proactive, aggressive Medical Team, knowledgeable of this rare disease. Their goal is Lacey’s cure. There will be ongoing treatment at home in California and some requiring travel. She’ll receive Chemo and Immunotherapy, which may also include continued Surgeries, Ablations, and a living donor transplant, if that plan is needed. The goal is to find the treatment that not only stabilizes, but ultimately cures Lacey. 
While the finish line with this disease at times seems to evade us, Lacey weathers each storm with grace and grit. She makes every day “the best day ever”. In such Gratitude, 
The White-Funkhouser Family “It doesn’t get any easier, you just get stronger... That’s what a storm is all about. You may fall down and lose your spark, but when you rise up, rise up with the whole damn fire” Lacey 🔥💪🏼💛🌻
#GirlOnFire #LaceyStrong #TeamLaceyGrace #GraceAndGrit #RUSHUniversityMedicalCenter #RUSHChildrensHospital #RUSHLiverTransplantTeam #RUSHPediatricOncology #Chicago #AgouraHills #FibroFighter #FibrolamellarHepatocellularCarcinoma
  • Thank you to those of you who have come along side and joined us in Lacey’s journey. We are so grateful for your support. Whether it’s sharing Laceys story, messaging us, praying for her, contributing to her GoFundMe, holding thoughts in your heart of love, strength and a cure for Lacey, we are more than grateful.
    As Lacey’s Mother, I experience pain for her pain and at times overwhelmed with a myriad of emotions. In this and although we are away from home, I feel such a presence of love and strength all around me... all around Lacey. We feel your love and support.
    Starting with this life-saving surgery in Chicago, Lacey has a proactive, aggressive Medical Team, knowledgeable of this rare disease. Their goal is Lacey’s cure. There will be ongoing treatment at home in California and some requiring travel. She’ll receive Chemo and Immunotherapy, which may also include continued Surgeries, Ablations, and a living donor transplant, if that plan is needed. The goal is to find the treatment that not only stabilizes, but ultimately cures Lacey.
    While the finish line with this disease at times seems to evade us, Lacey weathers each storm with grace and grit. She makes every day “the best day ever”. In such Gratitude,
    The White-Funkhouser Family “It doesn’t get any easier, you just get stronger... That’s what a storm is all about. You may fall down and lose your spark, but when you rise up, rise up with the whole damn fire” Lacey 🔥💪🏼💛🌻
    #GirlOnFire #LaceyStrong #TeamLaceyGrace #GraceAndGrit #RUSHUniversityMedicalCenter #RUSHChildrensHospital #RUSHLiverTransplantTeam #RUSHPediatricOncology #Chicago #AgouraHills #FibroFighter #FibrolamellarHepatocellularCarcinoma
  • 489 29 23 October, 2018

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  • In July of 1995, I walked into my oncology clinic and one of the nurses asked to speak to me...”I am concerned that you are in denial of your situation.” Confused I asked her what she was talking about -“you come in here three times a week, all smiles, happy to be here, talkative...I don’t think you understand the gravity of your situation.” I quickly visited in my head the panic attacks, the crying and inability to get out of bed just the day before that my dad had to drive an hour to coax me out of my depression” and appalled, I said to her...”how sad for you that you don’t know what Hope looks like.” And I walked out the door. #wearesurvivors #hopeismyanchor #hope #cancersucks #sowhatnowwhat #fibrolamellarhepatocellularcarcinoma #feardoesnotdefineme
  • In July of 1995, I walked into my oncology clinic and one of the nurses asked to speak to me...”I am concerned that you are in denial of your situation.” Confused I asked her what she was talking about -“you come in here three times a week, all smiles, happy to be here, talkative...I don’t think you understand the gravity of your situation.” I quickly visited in my head the panic attacks, the crying and inability to get out of bed just the day before that my dad had to drive an hour to coax me out of my depression” and appalled, I said to her...”how sad for you that you don’t know what Hope looks like.” And I walked out the door. #wearesurvivors #hopeismyanchor #hope #cancersucks #sowhatnowwhat #fibrolamellarhepatocellularcarcinoma #feardoesnotdefineme
  • 28 2 28 September, 2018
  • This machine and I have a love hate relationship!!! I love that it gives me results that are "All Clear". But I hate that I have to hold my breath for it every time I'm in it. 
This has been a long road.. this machine brings me back to the first day of hearing those words.  All I had was faith and my family and friends to get me through. There were no cell phones to take photos of my procedures. There was no go fund me page to help pay for things. There was no movie or rock stars visiting me in the hospital.  There was no Facebook, Instagram to blog on about it. It was just me.... Fighting for a life supported by family and friends.  Led by faith. Even though it has been 18 years. It seems like yesterday. 
I am blessed ..I am thankful for my health. I am thankful for my family and my boys. I am thankful for my dear friends who were always there for me. I am thankful that I am who I am because of cancer. I am stronger, and I cherish things more.

Breaking News- results are in... "ALL CLEAR"

#18yrlivercancersurvivor #godisgood #blessed #thankful #4timelivercancersurvivor #fibrolamellarhepatocellularcarcinoma #FCF #allclear #annualMRI #octislivercancerawarenessmonth💚 #mrimachine #loveandhaterelationship #dontbejealousofmyoutfit @fibrolamellarcancerfoundation
  • This machine and I have a love hate relationship!!! I love that it gives me results that are "All Clear". But I hate that I have to hold my breath for it every time I'm in it.
    This has been a long road.. this machine brings me back to the first day of hearing those words. All I had was faith and my family and friends to get me through. There were no cell phones to take photos of my procedures. There was no go fund me page to help pay for things. There was no movie or rock stars visiting me in the hospital. There was no Facebook, Instagram to blog on about it. It was just me.... Fighting for a life supported by family and friends. Led by faith. Even though it has been 18 years. It seems like yesterday.
    I am blessed ..I am thankful for my health. I am thankful for my family and my boys. I am thankful for my dear friends who were always there for me. I am thankful that I am who I am because of cancer. I am stronger, and I cherish things more.

    Breaking News- results are in... "ALL CLEAR"

    #18yrlivercancersurvivor #godisgood #blessed #thankful #4timelivercancersurvivor #fibrolamellarhepatocellularcarcinoma #FCF #allclear #annualMRI #octislivercancerawarenessmonth 💚 #mrimachine #loveandhaterelationship #dontbejealousofmyoutfit @fibrolamellarcancerfoundation
  • 65 18 24 September, 2018